Concerns about Molecular HIV Surveillance are heating up

PWN is fighting to #endMHS (Molecular HIV Surveillance) and one crucial way to do that is to spread awareness of what MHS is and why it’s harmful to people living with HIV.

A recent article from Kaiser Health News, Critics Worry Government Surveillance of HIV May Hurt More Than It Helps, states:

“…molecular surveillance has met considerable opposition since it was rolled out nationally. Service providers, health equity advocates, and people living with HIV worry the risks of the approach outweigh the benefits, and their concerns have gotten louder as awareness of the tool grows. Some have called for the practice to stop until federal health officials address concerns about patient consent, data security, and the potential for HIV criminalization.

“’This program — without having safeguards and guidances attached to it — has the real capacity to cause damage,’ said Andrew Spieldenner, vice chair of the U.S. People Living With HIV Caucus, which has issued a formal call for the CDC to stop the practice.”

This is why it’s so poignant that a group of researchers using data collected from MHS decided to stop and listen to our concerns. Instead of publishing their original study, they asked themselves crucial questions about ethics in research and decided to pause their project, publishing instead the lessons they learned through this process.

Join us for a fascinating conversation with the authors of “Lessons Learned from Community Engagement Regarding Phylodynamic Research with Molecular HIV Surveillance Data,” a recently-published paper discussing the importance of consulting people living with HIV (PLHIV) about the research methods that affect our lives.

Join us and lift up the voices of researchers working to truly reduce harm for PLHIV!

Register for “Lessons Learned” Fireside Chat tomorrow!

Roe Fell: Now What?

You know the state of things. On June 24th, the U.S. Supreme Court eliminated the constitutional right to abortion. States across the U.S. have already begun to eliminate access to abortion and anti-abortion lawmakers are pushing for the nationwide ban they’ve wanted all along.

Make no mistake: Abortion restrictions and bans are anti-Black, racist, sexist, classist and ableist. They are part of a larger tradition of state-sponsored reproductive oppression of marginalized communities in order to serve the interests of white supremacy, patriarchy, and capitalism.

Are you outraged? Are you furious and ready to fight? Join PWN-USA for our Reproductive Justice Teach-in. We’ll have a community discussion about what reproductive justice is, what it means for the HIV movement, and steps you can take for reproductive freedom.

Register for the Teach-In

Naina Khanna, co-executive director of PWN published an opinion piece on POZ.com detailing how the HIV movement finds its way from here. “PWN will do what we have always done. Ride with us if you want to survive,” she said.

Read “Roe Fell: Now What?” by Naina Khanna

 

Congratulations to PWN’s July 2022 Shero of the Month: Melanie Reese of Baltimore, Maryland!

Melanie Reese is the Executive Director of Older Women Embracing Life (OWEL). Melanie embodies the vision and mission of OWEL which seeks to connect a community of women who are living full, productive and happy lives despite the challenge of HIV/AIDS.

Watch the Interview

Join us for SWARM: Understanding the REPEAL HIV Decriminalization Act!
July 25

Featuring special guest speaker Gina Brown. Join SWARM (Southern Women’s Advocacy Response Mobilization) to get a better understanding of the REPEAL HIV Criminalization Act (HR 1305) and the tools to prepare you to support PWN’s Day of Action. Read more about the REPEAL Act here.

Sign Up for SWARM

Living Out Loud: Training Program for Women Living with HIV
July 26

We are committed to building the leadership of women living with HIV and affirm that YOU are a subject matter expert of your own experience! Enhance your advocacy skills to ensure all women living with HIV are represented and included in the decision-making that affects your life. Speak up for justice, end stigma, and help to create a safe environment for others to do the same. Join the PWN-Greater Houston Area chapter in partnership with the Afiya Center for a monthly training series created for and led by women living with HIV. The training will consist of four training sessions and a graduation ceremony. The first session will take place on Tuesday, July 26, 6-9 PM.

Register Here

Sister Circle Virtual Support Group
July 28

Join us this month on Thursday, July 28 at 8 pm ET/ 7 pm CT/ 5 pm PT for #PWNCares Sister Circle. Sister Circle is a virtual support group for women and people of trans experience living with HIV. Registration is required for participation. PWN members will receive a link to join the group once they sign up. We encourage you to join us and invite a friend!

Register Here


Join our team of dedicated staff! We’re looking for a Civic Engagement Program Manager to lead PWN’s electoral work. Is this the opportunity for you? It’s not too late to apply! Could this be a great opportunity for someone you know? Forward this email to them!

Apply Now


Unprotected: A Memoir
By Rae Lewis-Thornton

Rae Lewis-Thornton’s memoir is a captivating story of what happened to her as a child and how it helped to shape the trajectory of her life. From living in a continuous cycle of trauma to being diagnosed with HIV at the age of 24, Rae chronicles her journey and situates her life in the dichotomy between the early days of the AIDS pandemic and as a major force and political organizer for notable giants in politics. Rae’s transparency and self-awareness are both shocking and heartfelt. Today, almost three decades after her cover appearance in Essence and four decades of living with HIV, Rae tells all about how she survived the odds and continued to soar with a broken wing.

Get it Here

Tim Murphy, contributing editor of TheBody.com says of the memoir:

“It’s a remarkably detailed and highly readable account not only of childhood, but of how Lewis-Thornton’s unwavering belief that God had a plan for her led her into political action and her own higher education. That conviction even helped her take her near-fatal AIDS diagnosis and turn it into an opportunity to, in her words, let God speak through her to audiences, often young and Black, who desperately needed HIV/AIDS education and prevention know-how.”

Read Murphy’s interview with Rae Lewis-Thornton here.