Disclaimer: The views and opinions expressed in this piece are the author’s and do not necessarily represent the position of Positive Women’s Network – USA. 

Photo Credit: The Change Project

June 1, 2018

by Shyronn Jones, PWN-USA S.C.A.T. Rep/PWN-USA Policy Fellow

Despite some people’s perception of a long-term survivor of HIV, my presence redefines post era characteristics. First and foremost, I thank God for preserving my physical health, physical appearance and mental health. Being in permanent possession of God’s exceedingly abundant and unconditional love remedies all things. Secondly, I’m thankful for my self-perseverance. My spirit will not be broken! I had a positive attitude at the time of my diagnosis and I held on to that positive attitude throughout these 17 years of living with HIV.  Last, but not least, I thank my long-term partner “antiretroviral medications.” We’ve had break-ups and make-ups. But they’ve been with me when I needed them most.

There are many other people and things I’m thankful to, such as my family, friends, fellow advocates, healthcare providers and reggae music (specifically Dancehall, Soca and Calypso). Being connected to the people, places and things I loved prior to my diagnosis and continuing to take actions to be the person I envisioned to be prior to my diagnosis keeps me in good spirits.

Since my diagnoses, I pay closer attention to my body, mind and soul. When I feel severe fatigue, I take a vitamin C supplement. When I feel depressed and/or stressed, I talk with my Behavior Health Specialist. When haters over-occupy my personal and mental space, I identify, analyze and purge them along with some of the places they occupy. When low self-esteem sets in, I exfoliate my skin, shave, shit, shower, moisturize my skin, get my hair and nails done, put on a nice outfit and jewelry. When I experience or witness injustice, I advocate. I usually feel better after doing these things.

The love I have for advocacy is too strong for me to not make time in my life and space in my home for it. My bedroom closet does not store clothes or shoes; it stores educational materials. I’m prepared and dedicated to assisting with intersectional factors of HIV/AIDS support, intervention and prevention.